LCCF currently supports five programs that focus on childhood cancer in BCS. The newest one involves a collection of cancer data for the whole state: Registro de Cáncer de BCS, A.C.
What is cancer?
Cancer is the common name for a set of related diseases in which an uncontrolled process is observed in the division of the cells of the body. It can begin in a localized area and spread to other surrounding tissues. In general, it leads to the patient’s death if the patient does not receive adequate and timely treatment. More than 200 different types of cancer are known.
According to the World Health Organization, cancer is one of the main causes of morbidity and mortality worldwide, in 2014 alone, there were around 14 million new cases and 8.2 million cancer-related deaths.
In Mexico, although efforts have been made, cancer has intensified. Since 1990, cancer morbidity and mortality is considered a public health issue. The death rate from cancer in the last 30 years, between 1980 and 2011 grew 56%, according to the Secretary of Health. In those years, this rate went from 39.5 deaths per 100 thousand inhabitants to 61.7 deaths per 100 thousand inhabitants.
What is a Cancer Registry and what is it for?
In BCS, malignant tumors are the second highest cause of mortality in children between 5 and 14 years of age* and it is because of this that LCCF has supported, since the beginning, programs related to cancer. LCCF supports initiatives that focus on childhood cancer from a comprehensive approach, and that is why it becomes important to also support the research and collection of relevant data.
The project to make a cancer population registry in the state of BCS began in 2016. It was created in order to have a clearer picture of cancer incidence within the state, as well as to highlight which communities have a higher rate, and to be able to create statistics that will help us in the future to have more knowledge about the conditions that favor the presence of this disease, its treatment, and possible prevention. In 2016, LCCF supported with funds that allowed the start-up and fulfillment of this project.
In April 2017, the Mexican Senate approves the creation of the National Cancer Registry that will allow to measure and control its impact in our society, understanding its causes and incidence in the country to apply better diagnoses and medical care to patients. With this approval of the amendment to the General Health Law, the project of making a population cancer registry in the state of BCS begins to take shape.
In other Latin American countries this proposal is already in operation, cancer population registries have been created in: Argentina (4), Brazil (6), Colombia (4), Costa Rica (1 national), Cuba (1), Ecuador (“) , Jamaica (1), Puerto Rico (1 national) and Uruguay (1 national). In Mexico, Jalisco and Yucatan were among the first states to create a registry.
In September 2017 the meeting “National Cancer Registry in Mexico” was carried out in the city of Merida, Yucatan. Merida has the most structured plan for a state registry, with personnel and specialized software based on international standards. Within this meeting, the local non-profit supported by our Spirit of Joy program, Registro de Cáncer de BCS, A.C., had its first presentation where they shared their 2016 progress.
What data is included in a cancer registry?
- Patient information, which is grouped in the following areas:
- Data related to identity, occupational and work history, in accordance to the laws related to the protection of personal data of the patients.
- Demographic information.
- Tumor information: Includes cancer diagnosis date; the anatomical location; if it is the case, laterality; the incidence and the state of the disease; the histology of the primary tumor and its behavior.
- Information regarding the treatment that has been applied to the patient and the follow-up that has been given to it by the doctors. In addition, healing and survival information will be included.
- The source of information used for each modality of diagnosis and treatment.
- All additional information determined by the Secretary of Health.
The Secretary of Health will integrate the demographic information of the National Cancer Registry of the entire national territory divided into northern, central and southern regions.
*Source: INEGI, Encuesta Intercensal 2015.